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O bem-estar de cuidadores de crianças típicas e crianças com necessidades especiais

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v. 20 n. 2 (2020): Diciembre
https://doi.org/10.5354/0719-5346.2020.53884

Resumo

To carry out this study, an exploratory-descriptive and qualitative approach was used, in a pediatric outpatient facility from a federal university of Triângulo Mineiro’s region, Brazil. The main goal of the following study is to investigate the well-being of caregivers of typical children, and with special needs of care, from birth to the age of 12 years old. Twenty caregivers participated of this research between November 2018 to May 2019. The data collection instruments were a questionnaire and a semi-structured interview, and the collected information was processed through a Bardin themed analysis. The study followed the 466/12 Resolution of the National Health Council and was approved by the Research Ethics Committee of the same University and by the participants through a Consent Form. After reading, analyzing and organizing data, three themed categories were created: 1) The motherhood impact on the caregiver’s routine; 2) Relation between well-being and social support; 3)The child’s health condition’s influence on the well-being of the caregiver. It was concluded that the changes in the maternal routine, the choices in everyday life and existing or nonexisting social support, will interfere in the well-being of the caregivers and the children, both typical and with special needs; it is important to note that the ones with children with special needs will suffer greater impact in all aspects of life, such as psychological, physical, social and economic.

Palavras-chave:

Caregivers, mother-child relations, self-care, occupational therapy.

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Lucieny, L. A., & Cordeiro, V. P. J. (2020). O bem-estar de cuidadores de crianças típicas e crianças com necessidades especiais. Revista Chilena De Terapia Ocupacional, 20(2), 221–235. https://doi.org/10.5354/0719-5346.2020.53884
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Revista Chilena de Terapia Ocupacional
Facultad de Medicina
Universidad de Chile
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